I have not updated much. So, I have been continuing to not take any painkillers - I think the last I touched was some ibuprofen late in January. I went to a private neurologist a bit before that, and was told more or less the same things as the first neurologist had said, but he actually explained stuff, and agreed that diagnostic tests ought to be done. I am now waiting for another NHS appointment to try and persuade this one of that.
That happens at the end of March. By then I will have not taken any NSAID or opiates or over two months, which should rule out side-effects from frequent use of those as a cause of the new symptoms. I have a small stock of sumatriptan which is magic, but I am also trying to avoid using more of twice times in any seven day period, because the internet thinks those can also cause medication overuse headaches. Right now I would love dearly to take one, but I have only 2 left and I already took ones Thursday and Saturday. Maybe I could try a codeine: it has been a long time.
Because it's those new symptoms that are continuing to really scare me. The phasing out and the feeling of shifting pressure inside the head and eyes, possibly circulatory related. As this continues I have been able to get a better handle on what triggers it. Lying down is a killer, and so is closing my eyes, or not thinking about anything. I still have no idea about what might be doing that. Google suggests sinusitis, which is another thing to add to my list of things to be worried about, might be another autoimmune thing, and would also explain why the virus I had early in Jan really knocked me out.
Additionally, would you believe it, my joints hurt a lot more now that I'm not taking any painkillers. Shocking, eh.